AFL Champion and Fox Footy host, Jonathan ‘Browny’ Brown and his family have a personal connection with EB through their close friends the Azzopardi family who live with and face the daily challenges that EB brings. Browny is committed to supporting EB Research Partnership Australia and is a passionate advocate and supporter of the many families living bravely with EB.
It would mean everything to John to be able to do the simple things – drive a car, ride a bike, hold down a job, help out his family, and to be there for the big things – to see his team Port Adelaide win a flag!
John lives with Recessive Dystrophic Epidermolysis Bullosa. He is 19 years old. Thanks to help from DEBRA, the Adelaide Children’s and Royal Adelaide Hospital teams and the unwavering love and support from his adoptive parents Therese and Neville Busch John has beaten death twice and is here and working to get the word out about EB.
Following nationwide coverage of John’s story in 2023, John would like to use his profile to raise awareness of EB and raise funds for research to find a cure.