EB Research Partnership Australia: Content Use Permission

EB Research Partnership (Australia) Ltd (EBRPA) (ABN 22 615 377 136) is a charity registered in Australia with the Australia Charities and Not-for-profits Commission (ACNC). EBPRA’s mission is to raise funds to invest in science & medical research that will lead to products and therapies for treating and ultimately curing Epidermolysis Bullosa, a group of life threatening skin disorders that affects children from birth.


EBRPA produces publications, uses social and traditional media to raise awareness of EB and runs fundraising campaigns to serve the mission and raise funds for research. Conducting this work involves the production and distribution of promotional material (which may involve reproducing, adapting, publishing and communicating to the public the content) through such media as:

  • external publications, such as newspapers and magazines;
  • both printed and electronic copies of EBRPA’s publications, such as annual reports, funder reports and applications; and other publications of a similar nature;

  • television and radio segments or advertisements;

  • EBRPA’s websites, and profiles/webpages controlled by EBRPA on social media platforms, such as YouTube, Instagram, Facebook and Twitter;

  • email or printed correspondence sent by EBRPA to people who may be interested in supporting EBRPA’s charitable work; and

  • occasionally, and only with EBRPA’s prior permission, through publications by EBRPA’s partner organisations (such as corporate sponsors and other charitable foundations), for use by those organisations for similar purposes.

By completing this form you understand that you do not own copyright or have any rights of ownership or other claim over the images or video captured. You may withdraw your consent at any time by contacting our team via the website www.ebresearch.org.au or email: info@ebresearch.org.au. It is important to note any consent withdrawn will only relate to the future use of captured images or video.

Content Use Permission:

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Carer or Parental Consent

(e.g. parent, guardian, carer)
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This field is for validation purposes and should be left unchanged.

We request your contact details so we can contact you for any potential future use of images or content. EBRPA’s Privacy Policy is found on our website here: https://ebresearch.org.au/donor-privacy-policy/

If you have any questions about this permission form, or about ERBPA’s programs more generally, please contact us via our website, at www.ebresearch.org.au

EB Research Partnership (Australia) Limited is a charity registered with the Australian Charities and Not-for-profits Commission, ABN: 22615377136.