Fundraise to #CureEB

Fundraise for EB! 

From giving up presents, to running a marathon, climbing a mountain or selling cakes, there are so many ways for you to make a difference.

Download our Fundraising Kit or contact the team at for more information. 

Visit our community fundraising page to easily set up your own fundraiser for EB Research!

​“It’s about the most insane skin disorder you can imagine. And when you realize it also affects the internal organs, then you see it as diabolical.”

Ed Vedder, EBRP Co-Founder