Cause The Wave

Jill and Ed Vedder's Commitment to #HealEB

Cause The Wave

Meet Jill and Ed Vedder.

​Jill and Ed knew they had to take action when a childhood friend’s son was born with EB. They combined their commitment to catalyzing global change with Ed’s powerful platform of being the singer-songwriter for one of the world’s biggest rock bands: Pearl Jam. Together, they are not only co-founders of EBRP USA but also leading ambassadors, sharing the mission of curing EB with the world.

​“It’s about the most insane skin disorder you can imagine. And when you realize it also affects the internal organs, then you see it as diabolical.”

Ed Vedder, EBRP Co-Founder