PRESS

Contact

Sarah Thyssen
Phone: +61 (0) 438 442 263
Email: sarah@ebresearch.org.au

EBRP Reportin’ for Duty

EBRP Reportin’ for Duty

EBRP hosted the second annual Reportin’ for Duty on Saturday, February 17, 2024 raising over $1 million for EB Research. This year's show was a 250-seat concert featuring Post Malone joined by EBRP Co-Founder, Eddie Vedder, Jelly Roll, The War And Treaty, Jake Wesley...

read more
EB Awareness Week: Help cure EB by 2030

EB Awareness Week: Help cure EB by 2030

EB Research Partnership Australia (EBRPA), the largest not-for-profit organisation funding research to cure Epidermolysis Bullosa (EB), is calling on Australians to help cure EB by 2030 this International EB Awareness Week (25 - 31 October 2022). To donate please...

read more
TOUGH TILLY HOPES FOR HAPPY ENDING TO FAIRY TALE STORY

TOUGH TILLY HOPES FOR HAPPY ENDING TO FAIRY TALE STORY

Tough Tilly, the two-year-old half-sister of Centenario, faces her biggest challenge yet this Saturday night at Tabcorp Park – and true to her namesake, she’s ready to put up a fight.The filly is named after Tilly Wilkes, an inspirational 9-year-old who was born with...

read more