PRESS
Contact
Sarah Thyssen
Phone: +61 (0) 438 442 263
Email: sarah@ebresearch.org.au
EB Awareness Week: Help cure EB by 2030
EB Research Partnership Australia (EBRPA), the largest not-for-profit organisation funding research to cure Epidermolysis Bullosa (EB), is calling on Australians to help cure EB by 2030 this International EB Awareness Week (25 - 31 October 2022). To donate please...
EBRPA Enters Into Partnership with The Adelaide Football Club to Find a Cure
EB Research Partnership Australia (EBRPA) is thrilled to announce we are partnering with the Adelaide Football Club is to raise awareness and funds for Epidermolysis Bullosa (EB). The Crows will use their Round 16 home game against Melbourne to support our cause. We...
CAM (SINCS) SINCLAIR JOINS TEAM EB RESEARCH PARTNERSHIP (AUSTRALIA)
EB Research Partnership is delighted to announce that Nitro Circus legend Cam (Sincs) Sinclair has officially joined our team as Ambassador. Cam has been actively involved with EBRP Aus for years, he is a wonderful contributor and is often seen at events. We’ve loved...
TOUGH TILLY HOPES FOR HAPPY ENDING TO FAIRY TALE STORY
Tough Tilly, the two-year-old half-sister of Centenario, faces her biggest challenge yet this Saturday night at Tabcorp Park – and true to her namesake, she’s ready to put up a fight.The filly is named after Tilly Wilkes, an inspirational 9-year-old who was born with...