SHARE YOUR STORY

Fill out the form below if you’re interested in sharing yours or your child’s EB journey with EBRP. Our #EBSuperheroes are featured on our website and social media channels. A member of the EBRP team will be in touch to introduce themselves.

Additionally, we will begin sending you a monthly newsletter to let you know how you can be involved in our upcoming events and campaigns.

​We’d love to hear from you!