Small actions can generate a lasting impact

Join the EFFECT ~ Become a regular donor and help us Heal EB


The “Butterfly Effect” is the idea that seemingly small actions can lead to large-scale change, like a butterfly flapping its wings causing a tornado or a group of supporters coming together to heal EB. We created The Effect to crowdfund the most innovative research projects – research that has the potential to cure EB and change the course of rare disease as a whole.

We have reached the threshold of a far more promising future for children born with EB. Leading researchers believe that a cure is within reach.

Become a member of The Effect to make that belief a reality.

Sign up now to become a regular donor