Scientific Advisory Board

The Board of EBRP is advised by a Scientific Advisory Board (SAB) made up of specialists in the field of genetics, hematology, protein therapy, and dermatology. The SAB offers insight and guidance to applicants, fostering an environment that encourages research, collaboration, and ultimately accelerates progress towards a cure for EB.

  • A smiling woman wearing glasses and a white lab coat, with short dark hair and a pearl necklace, against a plain background.

    Anne Lucky, M.D.

    BOARD CHAIR

    ​Medical Director of Epidermolysis Bullosa Center of Cincinnati Children's Hospital

  • Man wearing a beige jacket and blue plaid shirt standing outdoors

    Greg Barsh, MD, PhD

    BOARD MEMBER

    Head of the Barsh Lab at the Hudson Alpha Institute for Biotechnology

  • Woman in white lab coat with black shirt and heart-shaped necklace, smiling.

    Suephy C Chen

    BOARD MEMBER

    Associate Professor of Dermatology at Emory University

  • Smiling man in office surrounded by colorful folders and documents

    Alain Hovnanian, M.D., PH.D.

    BOARD MEMBER

    Professor of Medical Genetics and Director of an INSERM Department at Necker Enfants Malades Hospital

  • Person in a laboratory wearing a white coat

    Christopher Sloey

    BOARD MEMBER

    Senior Scientist at Amgen Inc. working in Drug Product Technologies

  • Scientist in lab coat holding cell culture plate in laboratory

    Amy S Paller, MD

    BOARD MEMBER

    Chair of Department of Dermatology at Northwestern University and Chair of Skin Disease Research Center and Director of Pediatric Dermatology Clinical Research