EBRP funds research to discover meaningful treatments and, ultimately, a cure for EB.

2

FDA Approved EB Treatments

160

Projects
Funded

20X

More Active EB Clinical Trials

110M

Dollars Raised For Research

Projects Funded / Active Clinical EB Trials

Since our founding, we have funded 160 research projects laser-focused on bringing life-saving therapies and cures to the EB community. Our work has transformed the clinical trial landscape from just 2 clinical trials in EB to over 40 today, an almost 20x increase.