Life with EB

Real People, Real Stories

Young child smiling indoors with bandaged arms and neck, wearing a dark shirt, in a sunlit restaurant with a glass ceiling.

Jacob: Dystrophic

Baby with skin rash wearing a red dress and bandaged hands on a gray floor.

Victoria: Junctional

A smiling woman sitting with a young boy who is hugging her.

Nina & Otto: Simplex

A young person with brown hair is smiling and leaning on a motorbike in a garage. They are wearing a blue hoodie and have bandages on their hands.

John: Dystrophic

Man wearing sunglasses and a headscarf outdoors with hills in the background, dressed in a Pac-Man t-shirt.

Paul: Simplex

Woman with braided hair smiling against a textured background.

Lisa: Dystrophic

Man and woman posing together, the woman wearing a floral crop top and shorts, and the man in a white shirt and blue pants, standing indoors with a racetrack view in the background.

Kendal: Simplex

Child smiling behind fairy lights indoors

Sophie: Simplex

Two women with dark hair taking a selfie outdoors, smiling at the camera.

Porsha & Sharon: Simplex

Smiling child with pink glasses, holding a donut and a pink unicorn-themed bag, wearing a Minnie Mouse shirt and tutu skirt in a room with open sliding doors.

Blakely: Simplex

Person sitting on grass by flower garden, wearing striped shirt and jeans.

Renae: Simplex